The Changing Tides of Special Needs Parenting & the Cycle of Grief: We’re Lucky. But Sometimes It Doesn’t Feel That Way. [Featured on the Mighty]

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The morning surf-check is one of life’s delicacies. A day of clean waves is nothing short of a gift from God.

Unfortunately, the clean lines that surfers crave do not always march to shore. When the variables – wind, swell, tides, etc. – are not aligned those clean lines become a mass of confusion, some days/hours/minutes more threatening than others.

Those messy, threatening days do not dilute the fortune of living by the sea. The stormy moments offer a richness that would be lost if every day was nothing but clean lines.

Similar to the rogue wave or sudden storm, life’s engineering does not always match the forecast.

The Mrs. and I have shared the beginning of our special needs parenting journey:

As this special needs journey continues, the richness matches the beauty of the sea – unfolding in calm breezes, clean waves, and favorable tides. And unexpected storms.

Unfortunately, as any surf forecaster will tell you, ignoring the storm does not change the foreboding path. Storms will arrive. And patterns will repeat.

There is a cycle of grief. And this cycle repeats. Despite my best intentions to change the unchangeable, I recognize this cycle because we experience the raw emotions – on repeat.

  1. Denial
  2. Anger
  3. Bargaining
  4. Depression
  5. Acceptance

We work through this grief cycle individually and as a family. We manage this cycle as best we can, and I’d like to believe we are improving with each repetition.

We yearn towards the clean lines of acceptance, and we revel in the warm sun and cool breeze of our strong, loving family. The majority of our time is spent enjoying the amazing waves of love and happiness that ALL special needs parents know.

But we need to mindful of the forecast. We don’t know when the storms will blow through, and we don’t know how hard we will need to bear down to remain grounded, but be prepared.

It’s amazing what a well-timed hug or good cry can do.

We’re lucky to live by the sea, but we’re even luckier to be special a special needs family.

The Reality of Parenting: An Occasional Hit to the Groin

Parenting is rad. Very rad.

However, for anyone considering a journey down the parental path, every yin has a yang.

The reality of parenting?

Sometimes, as you stretch your arm across the counter to purchase a pound of your favorite coffee beans, an awesome man cub may just reach out and knock you in the midsection.

A toddler ambush. How do they have such a keen sense of attack?!

No matter how adorable, protect yourself. Cute AND sinister.

 

Dude’s Way of the Peaceful Parent

Peaceful Parenting

Peaceful Parenting

Here’s a tip o’ the hat to a new blog resource here on the Dude; Zen Habits.

This dude Leo Babauta has built a blog empire in a short few years. 240,000 subscribed followers! Dang!

He’s done an amazing job of leveraging the power of a blog to build himself a nice writing career. Yes, blogging is now a career path…if you can do it right. And Leo has.

If you haven’t checked out ZenHabits.net, it’s worth a visit. I snag some good info from there from time to time. More originals than curration, and as the name indicates the topics tend to be focused on life skills built on simplicity – a Zen-like mentality.

The blog is groovy, but what I find most amazing about Leo is that he has six kids. Yes, 6 kids! That’s a full-time job in itself.

So when I saw his recent post “The Way of the Peaceful Parent,” I was immediately intrigued. I like to think the Dude’s parenting philosophies fit nicely into the peaceful parenting mold, but I needed to see what a dude with 6 kids had to say about it.

And I was not disappointed. Leo made some great points. So I figured I’d cherry-pick some of the steps on the Peaceful Parent path that fit nicely into the Dude’s world. Here’s a good start to a loose definition of the Dude’s Way of the Peaceful Parent – courtesy of Zen Habits…with some added commentary from the Dude. 🙂

  • Greet your child each morning with a smile, a hug, and a loving Good Morning!
    • Dude: Not always easy if you don’t consider yourself a “morning person” – whatever that means – but this is a MUST. We all deserve to get our day off on the right foot.
  • Read to them often. It’s a wonderful way to bond, to educate, to explore imaginary worlds.
    • Dude: It’s easy to find reasons not to. We’re all busy. But the end result is awesome. Quiet hugs while we build imagination and precious reading habits. Well worth the effort.
  • Build forts with them. Play hide and seek. Shoot each other with Nerf dart guns. Have tea together. Squeeze lemons and make lemonade. Play, often, as play is the essence of childhood.
    • Dude: I’d take this a step further. Play is the essence of life, not just childhood. We all need to play. Free the kiddos, and ourselves, for as much play as possible.
  • When your child asks for your attention, grant it.
    • Dude: Definitely. Kids need our attention. Parent’s attention will build confidence and develop a strong loving bond. Lavish the kids with attention. At some point, they will stop looking for attention, and hearts will break.
  • Model the behavior you want your child to learn. Be calm, smile, be kind, go outdoors and be active.
    • Dude: Heck yeah. The kids will become what they see everyday. And parents are what they see. Be the person you want your kids to be. Easier said than done, but a must. “Be calm, smile, be kind, go outdoors and be active.” Perfect.
  • Remember that your child is a gift. She won’t be a child for long, and so your time with her is fleeting. Every moment you can spend with her is a miracle, and you should savor it. Enjoy it to the fullest, and be grateful for that moment.
  • Let your child share your interests. Bake cookies together. Sew together. Exercise together. Read together. Work on a website together. Write a blog together.
    • Dude: Little helpers are awesome, and we’re building skills along the way.
  • Patiently teach your child the boundaries of behavior. There should be boundaries — what’s acceptable and what’s not. [H]ave patience, but set the boundaries. Within those boundaries, allow lots of freedom.
    • Dude: Modeling behavior is a great way to instill boundaries naturally, but  inevitably, there are times when we will need to say “no.” Set boundaries and keep moving.
  • Sing and dance together.
    • Dude: Life is short. Have fun. And make sure the kids are having fun.
  • Take every opportunity to teach kindness and love. It’s the best lesson.
  • Kiss your child goodnight. And give thanks for another amazing day with your beautiful, unique, crazy child.
    • Dude: Amen. Start the day with a kiss and an “I love you,” and end it the same way. The world may seem crazy, but we are amazingly lucky to be where we are and have the gifts that we have. Have gratitude.

 

Eat the Crust First

Are we a cut-the-crust-off-your-bread type of family?

I’m sure there is great reasoning on both sides of this discussion, but regardless of the decision, this seems like a choice that helps define a family.

Life lessons from bread crust?

I want to make sure my kids have what they need, but I don’t want to be cutting their crust throughout life.  Working through a tough crust – nice metaphor for life experiences – can help build character.

I was going to try to make the, crust has more nutrients argument, but the magic of Yahoo Answers demonstrated that this is most likely a myth.  So, I think I’ll fall back on the true crux of the issue.

From the Dude’s perspective, cutting the crust off a sandwich adds an extra step for busy parents, and throws the child/parent balance off.

There’s nothing wrong with the crust.  A little tough?  Sure.  But it’s part of the bread.  Why would we cut it off?

It seems frivolous, and to meet frivolous desires encourages more frivolous desires.  Ok, that sounds a bit extreme.

But the premise seems to fit.  We don’t need to create extra work for an everyday event that is unnecessary.

I suggest the complete opposite approach.  I can admit the crust is a bit harder to chew, so instead of stressing about it, tackle it first and save the best part for last.  That makes the last bite that much better…ah, the soft middle bite that offers the most gooey part of the fluffernutter.

Do we want our kids chasing every frivolous desire, or do we want them tough enough to tackle the tough challenges first so they can enjoy life’s finer points that much more?

Seems like an easy decision to me.

We are a crust-on type of family.

That’s what I thought until I walked into the kitchen this morning.

Mrs. Dude, we need to talk…

Eat the Crust First

Eat the Crust First

Zen and the Art of Parenting

Zen and the Art of Parenting

Zen and the Art of Parenting

Zen and the Art of Parenting

It’s 2010.  We have women’s suffrage.  Women have broken through the “glass ceiling” in corporations worldwide.  I read the other day that for the first time, more women are now graduating with PhD’s than men!

Women have made huge strides in equality, but from where I sit, Mom’s still keep the house together.  I think it’s an instinctual ability.

When Dad  steps in on a solo mission, there’s always a chance for a little craziness.  The mission will be accomplished, but it’s never quite as smooth as when Mom handles it.

Tuesday offered a good test.  The Princess had her first dance class, followed by soccer practice numero dos, and Mrs. Dude had her first photography class.  It was a busy day.  Tuesdays will be busy for a few weeks.  If you do the math, this leaves the Dude managing all parental tasks including to and from soccer, dinner, bath, bed…sans Mrs. Dude.

Solo parenting is tough.  There are a lot of challenges managing multiple little lives.

Parenting definitely creates an environment conducive to increased levels of stress.  Opportunities to worry.  Reasons for frustration.

But, it also gives us a catalyst to focus on the moment we’re living in.   Worrying and/or getting  frustrated with kids makes the situation that much more difficult to handle.  Kids sense emotions and energy, and when the energy is off, kids tend to shut down.

It’s an interesting task running a solo mission and trying to balance peace and tranquility with the hurdles along the way.

Ever heard of the book Zen and the Art of Motorcycle Maintenance?  It grabs my attention every time I see it at a bookstore.  I’ve never read it.  I don’t have a motorcycle.

But, based on assumptions I’m making solely from the title, I think parenting offers similar opportunities to motorcycle maintenance.  Parenting is stressful, but we have a choice between letting stress get to us or going with the flow.

I’m no Zen scholar, but my loose understanding could be summed up with the phrase “going with the flow.”

So, Zen and the Art of Parenting.

I approached this solo mission as most dads would, blindly.  I didn’t give it much thought.  See, dads tend to stumble our way through things.  Like that whole not asking for directions stereotype…it’s a stereotype for a reason.

I planned to leave work a little early, pick up the kids, and hit the road.  Shouldn’t be more to it than that.

Except, he’s hungry and his milk supply is leaving to learn how to snap pictures, so it’s bottle time, it’s getting chilly so he needs to change, might as well change the diaper, make sure the diaper bag has all of the necessities, Princess needs to get dressed, she needs to find her cleats and shin guards…and put them on, she needs a water bottle, and the dogs should probably go out.

Ok.  Not quite as easy as pick up the kids and hit the road.  Thankfully Mommy was there to offer these suggestions prior to me leaving the house with a hungry, underdressed baby, and a soccer player without her gear.

To test my stress levels, these instances always seem to stretch to the last second of available time.  So, we’re rushing out the door.  But there’s really no rushing with a five year old and a 3 month old.  Life just moves at a slower pace.

I realized this as we meandered to the car, and I decided to move slower but more deliberately.  Give myself time to make decisive actions, and ultimately move at the pace kids move.  But more importantly, I was focusing on the task at hand…the present moment.  I was moving slower, but I was more efficient with my actions.

We pile in, and Little Dude starts to wail before we’re out of the driveway.  He’s been doing this in his seat lately.  Not a big fan of being locked down.  But we didn’t have time for consoling.

We hit the road, and I reached behind me trying to soothe him.  Yeah, not the safest idea, but a screaming baby requires a bit of risk taking.

As I pull to a three-way stop in the neighborhood, I let the car to my right and the car across from me go before me.  Both slightly beat me to the intersection.  Once they passed, I made my way through the intersection, and some dude decided he was playing the role of Citizen Patrol and yelled “Nice stop!” at me.

I’m still reaching back trying to soothe a screaming baby.  The windows are down, so he should be able to see this.  This seems like a situation where regardless of a minor traffic infraction, you should probably give the driver the benefit of the doubt.

Plus, I did stop!  I let two people go!  Perhaps I was rolling slightly, but it was a stop.

It seems like these types of situations always happen at the most inopportune time.  A perfect opportunity for me to lose it.  But before any words could pass over my lips, my mind jumped back in and reminded me slow down.  Getting upset isn’t going to make this trip any easier.

In a minute or so I was passed it, but Little Dude was not past his screaming.  I pulled over and was able to calmly tuck some blankets around him, and he was asleep in seconds.  If I had been mad, that stop would not have been that easy.

Zen and the Art of Parenting

Zen and the Art of Parenting

Eventually we made it to the parking lot.  As I’m wrestling with the Bjorn, the pacifier bounces out of his blankets and rolls under the car.  At this point I’m relaxing into things, and rather than letting that be the straw that breaks my will, I recruit The Princess, and she crawls under to grab it.

We roll into practice a couple minutes late, but we are all in good spirits, and we didn’t miss much.

Mission accomplished.

Well, except that whole dinner, bath, bed thing.  But the kids were great, and I was practicing my Zen and the Art of Parenting, and we were good to go.  Whatever minor hurdles we encountered along the way we easily surmounted.

And the reward for a job well done, other than the opportunity to practice a little Zen, is a hug and kiss goodnight from a princess and  some Dude/Little Dude bonding time with lots of silly voices, tickles, smiles, and a five second lock of the eyes where it was clear connections were being made.

My boy is starting to realize who his Daddy is.  Glad I was in the Zen frame of mind to enjoy the moment…well, five seconds anyway.

The Princess Speaks

Princess Speaks

Princess Speaks

When a five year old speaks, the verbal onslaught is completely unpredictable…and hilarious.

It seems the Princess has some innate parenting skills…which she is happy to share with the Dude…

  • “Babies don’t like the dark.”
  • “Babies like to be with Mom.”
  • “I can’t feed Little Dude; I have little girl nipples.”
  • “It’s alright if he cries.  It hurts my ears, but I’m not frustrated.”
  • “Mom we’ve tried everything with Little Dude and he won’t cooperate.  I think he’s hungry.”

These parenting skills extend past Little Dude to the Dude.  Some of her go to lines these days…including hands on the hips and eyes rolling…

  • “What has gotten into you?”
  • “How many times do I have to tell you this?”

Another innate quality or already brainwashed by The Man?  Consumerism…Nature vs. Nurture

  • Princess excitedly proclaims,  “I just saw a bed on TV for $70!”
    Dude:  “Great.  Is that a good deal?  Do we need a bed?”

How are they making a bed look appealing to a five year old?  And why?  Just to torture parents?

  • While watching a kids channel, which should be providing quality stimulus but instead advertises products to kids that will torment parents, the Princess shouts to Mrs. Dude, “We need to go here.  I’m not sure where it is, but it’s only $53 a night.”

For real?!  Can we take a break from selling stuff 24 hours per day…to five year olds who have no money?  The Princess can’t distinguish a one dollar bill from a twenty dollar bill, but that commercial somehow has her convinced that $53  per night is a good deal and worth a trip to No Man’s Land.  Get out of our heads TV!

Pink one?In addition to hilarity, most Princess speak also includes a heavy dose of cuteness.

  • Accepting a serious life transition; “I like having a new brother in my life.”
  • Watching Mommy nurse; “Is he biting you?”
  • Talking to her friends at school; “When you have a new brother or sister, you can have a baby vacation too.”
  • While she enjoyed her first experience with the Wizard of Oz; “You can’t buy a brain.  All you need to do is ask God.”
  • Trying to avoid dreaded bedtime; Dude: “What time is it?”  Princess:  “Don’t ask Mommy, she doesn’t know.”
  • Mental preparation for the next big life transition, kindergarten; “I have to go to school in the fall.  But I can still trick or treat.  It’s at night, not during the day.”
  • Picking out the uniform for her new hobby, Tae Kwan Do (i.e. the all white “karate” uniform); “Mommy, is there a pink one?”

It’s pretty fun to witness life coming together one day at a time for a kid.

Experience

The Dude’s sister is in a race with the Duggars to overpopulate the Earth, or at least that’s how it seems to someone who is completely overwhelmed once the kid count rises above two…i.e. the Dude.

In reality, Sis is an amazing Mom and the Bro-in-law is a groovy Dad, so their increasing kid count is more a testament of their love and strong sense of family than anything else…but 5 kids is amazing and ridiculous all at the same time.

It just so happens that the Dude’s newest nephew and the Little Dude were born 19 days apart.  So, both families get to enjoy newborns and watch them grow up together.

For a new parent fumbling on a minute by minute basis through new parent things, it’s great to get tips from a true Mommy pro.

This morning I had the following Instant Message exchange with my sister:
[10:28:20 AM] Dude’s Sis:  Don’t underestimate the power of a picture.  They like faces… kept him happy for a while 🙂

[10:32:32 AM] Dude: Classic.

[10:36:40 AM] Dude’s Sis: haha just looked at it again… i actually snapped the photo after he had put himself to sleep.

True Experience

True Experience

This is what experience teaches?!  I’m way over-thinking this parenting thing.